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Podcasts


Podcasts are here! Listen to the Living With Cystic Fibrosis podcast on iTunes, Spotify, Google Play, or your favorite podcast source.

CF Foundations: from California to Michigan working together

I am so proud to bring you our CF partners from around the Country, (Siri Vaeth, CFRI, Inc., Lee Becker and Jerry Cahill, Boomer Esiason Foundation, Brian Callanan, CFLF and Emily Schaller, Rock CF Foundation) we do our individual work with our respective CF Foundations and come together as part of the CF Engagement Network (CFEN). CFEN focuses on issues that impact our entire CF communities. Our thanks to Ryan Gough for getting us together. We had candid conversations in this podcast. It is from the perspective of three people with CF (Emily Schaller; 38 years old, Brian Callanan;44 years old; and Jerry Cahill, 63 years old) along with two CF Moms (myself and Siri) and Lee Becker, Boomer Esiasons’ best friend, CF advocate and partner in the Boomer Esiason Foundation. He is the glue and reality check of our group. Siri comes to us from California, Lee and Jerry from their respective homes in NYC, Brian from Florida, Emily and Laura from Detroit. The one person who couldn’t be on this podcast is the “smartest one among us” said Callanan — Emily Kramer Golinkoff founder of Emily’s Entourage.

The Bonnell girls talk CF: from London, England to Detroit

The reason the Bonnell Foundation began was because I had two daughters with cystic fibrosis. This episode is my girls perspective. They live life to the fullest. They both traveled to Nicaragua for a mission trip (different years with their High School class), studied abroad in Spain (Emily) and England (Molly). I decided not to let my fear run their lives. They have missed party’s, school trips, events, school, college days and taken it in stride. They have skied with a picc line, been hospitalized in England with no family to care for her, but friends rallied. Emily’s daily life is often disrupted by pain from the disease, but she soldiers on. They have been through hell, and now, the pandemic. Their truth, and wise words are in this podcast. I realized parents needed both emotional and financial support. There were a lot of much needed fundraising being done by foundations for research, but in 1994, not much for parents. That’s when I decided it was important to start my Foundation. It wasn’t until 2010 that I had the time to do it. The girls were always in the hospital (usually Emily) and I was working in the field of my dreams: radio news reporter.

 

 

Project CF Spouse

When you think about cystic fibrosis, you probably think about the patient, and the parents who take care of them until they’re adults. But what about a patient’s spouse or partner? When a person starts dating someone with CF they probably don’t know the patient’s history, nor can they grasp the complications of the disease right away. A person with the disease has had a lifetime to get used to it. The same may be true of their parents. But for a partner, it is an entirely different story. In this podcast, meet the wonderful Megan Barker, the Director of Project CF Spouse. Her husband has CF. Rob Ronnenberg is in charge of the group’s strategic planning, and his wife has CF. I shared some tears with these two wonderful people; I am so glad to know them. Their foundation is off to a great start.

Dr Ann Barbier

Translate Bio’s Chief Medical Officer, Dr. Ann Barbier was recently at the North American CF Conference where she talked to Laura Bonnell about the exciting work they’re doing for people with CF. Translate Bio, a leading biotechnology company, focuses on pioneering the translation of RNA science into therapeutics, promoting healthy gene expression in people living with debilitating genetic diseases.

Children’s special Health Care Services with Dr. Colleen Barry

We talked with Dr. Colleen Barry about everything from prior authorization, to the future of CSHCS, carved out drugs fee for service and how new drugs like Trikafta will be covered. You’ll be “in the know” after you listen to this podcast.

Dr. Ahmet Uluer

In this podcast Laura Bonnell talks with Dr. Ahmet Uluer of Boston Children’s Hospital and Brigham and Women’s CF center in Boston where he is the Adult Program Director.  The Bonnell Foundation embraces Dr.Uluer ‘s love for the CF community, his time commitment to the CF community, along with his wealth of knowledge about CF that he shares with all of us so freely.  We spoke at the North American Cystic Fibrosis Conference in Nashville, TN about a week after Trikafta was approved by the FDA (Oct. 21st, 2019).

NIH Director Dr. Francis Collins on Trikafta and CF

Just over a week after Trikafta (Vertex Pharma) was approved by the FDA, five months ahead of schedule, five thousand people from the CF community were in Nashville, TN to attend the North American CF Conference. As the Founder/President of The Bonnell Foundation and mother of two daughters with cystic fibrosis I was thrilled to interview National Institute of Health (NIH) Director Dr. Francis Collins.

Listen:

Singer/Musician Kevf has CF. His story will inspire you, and you’ll want to attend one of his concerts.

Karma was at work when Musician Jill Jack called me to say she wanted me to meet a singer/musician named Kevf. His voice was amazing she told me, and by the way, he has cystic fibrosis. I shouldn’t be surprised anymore that everything CF comes my way. But I was! We have a big Gala event coming up September 28th, 2019 and I wanted Kevf to sing at our fundraiser. He agreed. His story and music will give you chills and make you smile.

Five Feet Apart and the Story That Inspired It

The movie Five Feet Apart was inspired by Claire Wineland. The movie’s main character, Stella, showcases Claire’s charismatic and fighting personality. In this honest, raw, and often emotional conversation, Laura talks to her mom, Melissa Nordquist Yeager, about Claire, Five Feet Apart, and life without her daughter. Claire Wineland lost her battle with Cystic Fibrosis in September of 2018, before the release of Five Feet Apart. It’s a frank, touching and inspirational conversation. Melissa also discusses her ever changing role as the founder and Executive Director of the Claire’s Place Foundation which donates to children and families affected by Cystic Fibrosis.

CF Attorney and Patient Beth Sufian

CF Attorney and patient Beth Sufian explains the legal pitfalls of dealing with Cystic Fibrosis and the important differences between Medicare, Medicaid, and Social Security.

Dylan Mortimer on CF and Art

Dylan Mortimer, a 40 year old CF patient and artist, talks to Laura about how Cystic Fibrosis has inspired his art and positive spirit.

CF Mom Roundtable

Laura Bonnell is joined by Michigan CF Moms Sam and Kim to discuss their journeys and shared experiences.

Live • Breathe • Inspire Podcast – Dr. Collins and Emily’s Entourage

This is a podcast with Dr. Francis Collins, Director of the National Institute of Health (NIH). He discovered the gene that causes cystic fibrosis in 1989 at the the University of Michigan in cooperation with a handful of other scientists. Dr. Collins recently received the Warren Alpert Foundation prize. The second part of this podcast is with Emily,

Co-found of Emily’s Entourage. She is 33 years old and has cystic fibrosis. With the help of her friend she got 5 broadway actors/singers to make a video about CF.

Hear their story:

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