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Media & Press Coverage

The Bonnell Foundation has been featured in newspapers, TV, lifestyle publications and more

In Michigan, the RDAC

Representative Jason Morgan reintroduced the Rare Disease Advisory Council (RDAC). See the press release:  Morgan Reintroducing Bill Creating Rare Disease Advisory Council - housedems.com

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Medical Research in Jeopardy

Laura Bonnell, CEO of The Bonnell Foundation: Living with Cystic Fibrosis, talks with Marie Osborne on WJR radio to discuss how a 15 percent cap on NIH grants will catastrophically impact research and end hope for cures. read more

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Rare Disease Advisory Council

The newly constituted Michigan Rare Disease Advisory Council (MI RDAC) met in early October 2024 and began its mandate as an advisory body that provides Michigan’s rare disease community with a stronger voice in state government. Read more

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