Cystic Fibrosis Awareness Month: Foundation raises money to help those with rare disease
By Amy Lange, FOX 2 Detroit
The Bonnell Foundation Founder, Laura Bonnell talks to Fox 2 News reporter/anchor Amy Lange about the importance of raising awareness about cystic fibrosis, fundraising and making people understand that anyone can be born with the disease, including people of color. Our Hispanic page debuts in this news segment!
Innovation – A Mother’s Story
Breakthrough cures for cystic fibrosis start by promoting science and innovation.
Michigan mom fighting for daughters with cystic fibrosis
Laura Bonnell, the founder of a foundation bearing her family’s name, is working to make sure people with rare diseases get representation in Michigan.
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Rare but not Alone: 1 in 10 Live with a Rare Disease
By Institute for Patient Access
The 30 million Americans diagnosed with a rare disease represent a large, underserved patient population. Their complex conditions are often poorly understood, and most have no approved treatment. Nevertheless, rare disease patients and advocates are finding purpose, building powerful support systems and working toward better outcomes for the rare disease community. Here are three stories that bear testament to their challenges – and their resilience.
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Living with Cystic Fibrosis: I’m Laura Bonnell and This is My Story
Laura Bonnell talks about the Rare Disease Advisory Council (RDAC) and cystic fibrosis on local NPR station, WDET in Detroit.
Bonnell was interviewed by Tia Graham and on the Morning Edition show with Pat Batchelor.
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Michigan residents with rare diseases could get more state support
By Vladislava Sukhanovskaya – Capital News Service
About a million Michiganders with rare diseases could receive better treatment if legislators establish a Rare Disease Advisory Council.
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Laura Bonnell’s Night of Hope to defeat cystic fibrosis is Sept. 25
FOX 2 – A local family has made it their mission to help those living with cystic fibrosis and this year — their annual fundraiser will return to in-person for their “Night of Hope.”
Laura Bonnell is the founder of the Bonnell Foundation established 11 years ago to help families living with cystic fibrosis – a deadly genetic condition that impacts the lungs and other organs.
The Bonnell Foundations Laura Bonnell talks to WWJ’s Greg Bowman about the CF Awareness Film Festival
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How America’s Vaccine System Makes People With Health Problems Fight for a Place in Line
