WJR community interview with Vanessa Denha
“It’s Your Community” | Sundays 6 to 6:30 a.m.
Each Week, WJR‘s “It’s Your Community” focuses on the names, faces, and happenings that are affecting our community. Join your host Vanessa Denha Garmo as she meets with community leaders, experts, and insiders to ask the questions that everyone is thinking. This week’s episode features Laura Bonnell.
WJR Interview with Laura Bonnell
Thanks to Marie Osborne, Steve Courtney and Dave Riger at WJR for doing such a wonderful interview with Laura Bonnell. The group talked about Bonnell’s travels to Egypt and all things CF, including the work done by her Foundation.
Former Detroit radio voice takes cystic fibrosis fight to Egypt
By Neal Rubin, Detroit Free Press
Laura Bonnell had a translator, because the parents in the room were mostly poor, and it’s typically the wealthy in Egypt who are most comfortable with English. When the screen filled with a picture of her daughters, though — her strong, beautiful, living, 27- and 25-year-old babies — there was no need for words. The universal language was tears.
Cystic Fibrosis Awareness Month: Foundation raises money to help those with rare disease
By Amy Lange, FOX 2 Detroit
The Bonnell Foundation Founder, Laura Bonnell talks to Fox 2 News reporter/anchor Amy Lange about the importance of raising awareness about cystic fibrosis, fundraising and making people understand that anyone can be born with the disease, including people of color. Our Hispanic page debuts in this news segment!
Innovation – A Mother’s Story
Breakthrough cures for cystic fibrosis start by promoting science and innovation.
Michigan mom fighting for daughters with cystic fibrosis
Laura Bonnell, the founder of a foundation bearing her family’s name, is working to make sure people with rare diseases get representation in Michigan.
Read the story here
Rare but not Alone: 1 in 10 Live with a Rare Disease
By Institute for Patient Access
The 30 million Americans diagnosed with a rare disease represent a large, underserved patient population. Their complex conditions are often poorly understood, and most have no approved treatment. Nevertheless, rare disease patients and advocates are finding purpose, building powerful support systems and working toward better outcomes for the rare disease community. Here are three stories that bear testament to their challenges – and their resilience.
Read the story here
Living with Cystic Fibrosis: I’m Laura Bonnell and This is My Story
Laura Bonnell talks about the Rare Disease Advisory Council (RDAC) and cystic fibrosis on local NPR station, WDET in Detroit.
Bonnell was interviewed by Tia Graham and on the Morning Edition show with Pat Batchelor.
Listen to the interview:
Michigan residents with rare diseases could get more state support
By Vladislava Sukhanovskaya – Capital News Service
About a million Michiganders with rare diseases could receive better treatment if legislators establish a Rare Disease Advisory Council.
Read the story here
