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This is a follow-up podcast about the Healthwell Foundation. Thanks again to Alan Klein, the Chief Development Officer for answering all of our questions and being transparent.
They help 90 different disease groups with funding (whatever is not covered by insurance). The Bonnell Foundation will refer people to Healthwell when the financial need is greater than we can give, or because we don’t cover a certain request for funds. Approximately 40 to 45 percent of the CF community is helped by Healthwell. Healthwell used to pay about $25 million each year for CF co-pays in therapeutics but because of the lack of funding from their corporate sponsors, Healthwell had to close their CF Treatment Fund to new and re-enrolling patients. There is a lot of fear since this happened in August, but the CF Vitamin and Supplement Fund, we were told would remain open, but now that may also disappear in 2024.
This podcast answers all your questions.