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The Bonnell Foundation Blog

Read founder and president Laura Bonnell’s personal account of how her family is living with Cystic Fibrosis.

University of Nebraska Medical Center’s Education Day

University of Nebraska Medical Center’s Education Day

I was in Omaha, Nebraska Friday and Saturday to speak at the University of Nebraska Medical Center’s Education Day (Nebraska Medicine). I was talking to a lot of Mom’s whose kids were recently diagnosed with CF. My hope was to inspire and education them about CF and...

Brett Bowman and Mom Kim talk transplant, blindness and legacy

Brett Bowman and Mom Kim talk transplant, blindness and legacy

My dear friend Kimberly Bowman, (and friend to so many in the CF community), tells her story with her son Brett Bowman in our Living with cystic fibrosis podcast out today. It will rip your heart out, inspire you and make you laugh. Kim's been through hell and back...

Prescription Drug Affordability Boards Do More Harm Than Good

Prescription Drug Affordability Boards Do More Harm Than Good

Shortly after my son was born, we learned he has cystic fibrosis – a deadly lung disease that can drastically shorten a person’s lifespan. It was a devastating blow as a mother. And throughout his life, I’ve remained his cheerleader, confidant, health proxy and...

Elizabeth W. – “Don’t stop living your life when crisis hits.”

Elizabeth W. – “Don’t stop living your life when crisis hits.”

My name is Elizabeth W. I’m an 18-year-old girl living with CF. I was diagnosed with CF shortly after I was born. For those who are unaware, Cystic Fibrosis (CF) is a hereditary disease that affects all systems of the body, but especially the lungs and the pancreas....

Night of Hope Celebration

Night of Hope Celebration

I can't stop thinking about our Night of Hope event! I am already looking forward to next year. I am already trying to figure out how to top this years Gala. It was perfect. The energy in the room was LOVE, JOY, HAPPINESS, GENEROSITY, GRATEFULNESS, TRUTH AND DID I SAY...

Celebrate!!

Celebrate!!

Life is even better when your daughter is found not to be sick enough to be admitted!!! Fever, after fever, after fever had us concerned.  Temps from 102 to 103.5, coughing, motrin, more motrin.   We’re certain she will be admitted. We head to the hospital today, bags...

8th Grade Graduation

8th Grade Graduation

8th grade graduation was a perfect day. Friends and family, what more could we ask for? Emily is moving on to the High School and we couldn’t be happier. We love milestones. We have made it this far, we’re excited for the future.  It’s bright. New medications coming...

Florida, Fun & Treatments

Florida, Fun & Treatments

The girls had fun visiting family in Florida.  Turns out too the ocean salt is good for cystic fibrosis.  They are on a drug that does the same thing as sea salt, hypertonic saline solution, they could skip it while in Florida.  The ocean did all the work!

Life Is Good…

Life Is Good…

Playing in the snow during the last snow day.  Today the girls are on winter break, but we got a ton of snow that shut down other schools. Molly is skiiing Crested Butte in Colorado!  And Emily is fully enjoying life as an only child!! Living every day.

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