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Laura's Speaking Engagements

Laura Bonnell Speaks at The Ohio Valley CF Consortium

The Ohio Valley CF Consortium unites scientists (clinical and basic research) together from CF Clinics in Michigan, Ohio, Pennsylvania, Indiana, Kentucky and West Virginia. There is an exchange of ideas, and so much always comes from this conference. This year The...

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October 15-17 NORD Summit

Laura attended to meet and listen to rare disease experts, but most importantly to meet other rare disease advocates.  It was a wonderful way to connect. 

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October 12th – Celebration of Hope, Grand Rapids

Laura spoke about The Bonnell Foundation and advocacy. The Prescription Drug Advisory Board (PDAB) is a hot topic. The rare disease community does not want it passed, but it sailed quickly through the Senate.  We've given amendments that include the patient voice to...

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October 11th – Lansing, Michigan

Laura advocates at the Lansing Capitol.  She testified before the Senate Health Policy Committee, asking Senators to pass the Rare Disease Advisory Council (RDAC). This will give all stakeholders (Insurance, Pharma, patients, parents, doctors, etc). Laura was in good...

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Patients Engaging: Empowering Your Voice

Patients are essential partners in developing measurable value in healthcare. Their voices should be heard by all stakeholders in the healthcare continuum – innovators, manufacturers, providers, payers, regulators and policymakers – from scientific discovery to care...

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