(248) 520-2329
Select Page

Advocating For CF

See who we’ve met during our travels while advocating for Cystic Fibrosis

Hear Our Science and Innovation Radio Ad

30-second commercial asking for support of Science and Innovation policies:

About the Rare Disease Advisory Council

The Bonnell Foundation, CFRI and CFEN collaborated by making this video that will help you understand what a Rare Disease Advisory Council (RDAC) is all about:

What’s Wrong with ICER?

Sometimes economists can have more control than your doctor about whether you get the medicine that treats your condition.

May is National Cystic Fibrosis Awareness Month

May is National Cystic Fibrosis Awareness Month

National Cystic Fibrosis Awareness Month in May encourages education in the battle against a lung disease affecting more than 30,000 people in the United States.

Cystic Fibrosis (CF) affects more than just the lungs. This genetic disease causes constant lung infections, but it also impacts other organs in the body where mucus builds up.

While there is still no cure for CF, advancements in treatment have made it possible for those with CF to live much longer than ever before. However, they live under the risk of infection and health problems due to CF. A cure is still needed.

CF Task Force Raises Awareness

The Bonnell Foundation: Living with Cystic Fibrosis and Rock CF organized the CF Task Force in January of 2017 to make certain that we were raising awareness as a CF community. Our hope since then has been that lawmakers will use us as a resource when making decisions that will impact people with CF and even people with other chronic illnesses. We meet periodically to discuss our concerns (healthcare, awareness, preexisting conditions and more). We encourage you to get involved. Please shoot us an email at: thebonnellfoundation@gmail.com.

“I am glad to be part of the CF Task Force because we have to stick together as a CF community and raise awareness to local legislators and anyone who will listen.” — Laura Hartson

Advocating For CF In Washington D.C.

Bonnell Foundation president Laura Bonnell and daughter Emily traveled to Washington D.C. March 30th-31st, 2011 to advocate for CF. They visited Rep. Sander Levin’s office and also met with Representatives Gary Peters, Bill Huizenga and John Dingell.

The Bonnell Girls Advocate For CF

The Bonnell girls met with Rep. Gary Peters in August 2010. He joins the CF caucus. Rep. Peters helped pass the Clinical Trials Bill into law. The girls are pictured with U.S. Senators Carl Levin and Debbie Stabenow, who passed the bill too. A huge thank you.

Become an advocate for CF

You can join The Bonnell Foundation to speak out and take action on behalf of Cystic Fibrosis. Fill out our Volunteer Form; it’s a great place to get started, and we’ll contact you with opportunities to help the cause!

    Make a Donation
    Lung Transplants