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These are scary times for everyone, but especially for people with cystic fibrosis.  The Bonnell Foundation is doing everything it can to raise awareness in the Metro Detroit area, and across the Country with other CF organizations.
 
Covid vaccine statement: On December 11, 2020, the U.S. Food and Drug Administration (FDA) granted Emergency Use Authorization (EUA) to one COVID-19 vaccine produced by Pfizer Inc./BioNTech. In addition, the vaccine produced by Moderna is approved by the FDA on 12/18/ 2020 and received the EUA approval 12/19/20.
Click here to read Dr. Nasr’s entire statement
 
Financial Assistance: As you know The Bonnell Foundation is offering financial assistance to persons with CF, as much as we possibly can, in the parameters of our budget.
 
College Scholarships: In the hopes that all is right with the world in the Fall, we will be awarding college scholarships. Apply for those by May 15th, 2020.
 
Resources in this time of crisis: We have a number of connections for you on our Resource page. One of the most helpful resources now is the email address to attorney Beth Sufian. Many of you have legal questions (unemployment, leaving work to care for your CF child, etc.). Sufian will help you for free (Beth has CF). Her email is: CFlegal@sufianpassamano.com or call: 800.622.0385. She says email is best. Nationally go to CDC.gov and locally, Michigan.gov for the latest on the pandemic.
 
The Bonnell Foundation is here to help you:
Please email us if you can’t find what you need, or call: thebonnellfoundation@gmail.com and 844.297.8423. I have two daughters with cystic fibrosis, I get it. One of them is sheltered in her London, England apartment. We’re in this together. #CFPower #CFStrong #CFAware

Science and Innovation

Laura has two daughters with cystic fibrosis. She talks about the importance of science and innovation for their future.

Jerry Cahill has cystic fibrosis and has had three transplants (lung, kidney and liver). He talks about the importance of science and innovation.

Colton Teicher has CGD and talks about why science and innovation is so important to him, and to all of us.

The campaign was made possible through an unrestricted grant from Pfizer to The Bonnell Foundation.

Podcast: NIH Director Dr. Francis Collins on Trikafta and CF

CF dream: it came true. A drug for my daughters: Trikafta. It could help 90 percent of the CF population. On my CF path I met Dr. Collins 30 years ago, before I even had kids born with CF. Listen to my podcast with him.

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Help Us Help Others

Please help us help others with day to day expenses of living with cystic fibrosis by donating to the BonnelFoundation.org. Click the play button to hear Laura Bonnell speak about the how the Bonnell Foundation helps those living with cystic fibrosis.

Save the Date!

There are no upcoming events at this time.

Some of our favorite ways to spread awareness include:

Blog • Tweet • Facebook • Instagram • Tell Friends • Letter to the Editor

Remember to share your CF story below.

The Bonnell Foundation is your Roadmap to CF.

Our mission is to help educate parents and find a cure for Cystic Fibrosis, so that one day no CF parent will experience the pain and loss of losing a child to this disease. The purpose of The Bonnell Foundation is to provide tools to navigate the difficulties of living with CF. We strive to connect families with resources through their CF journey. With our website, Roadmap to CF baskets, medical and academic scholarships, we hope to equip families with a roadmap to guide their way. Learn more about our organization

Living Life With Cystic Fibrosis

A Day With Cystic Fibrosis

Living With Cystic Fibrosis (Pt. 2)

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