For most, protective measures to guard against coronavirus are straightforward–avoid close contact and crowds, and work from home if possible, frequent hand washing, and so on. But for people with compromised immune systems, the threat is much more real. Laura Bonnell has two daughters with cystic fibrosis, she talked live with WWJ’s Sandra McNeill.
When you think about cystic fibrosis, you probably think about the patient, and the parents who take care of them until they’re adults. But what about a patient’s spouse or partner? When a person starts dating someone with CF they probably don’t know the patient’s history, nor can they grasp the complications of the disease right away. A person with the disease has had a lifetime to get used to it. The same may be true of their parents. But for a partner, it is an entirely different story. In this podcast, meet the wonderful Megan Barker, the Director of Project CF Spouse. Her husband has CF. Rob Ronnenberg is in charge of the group’s strategic planning, and his wife has CF. I shared some tears with these two wonderful people; I am so glad to know them. Their foundation is off to a great start.
Translate Bio’s Chief Medical Officer, Dr. Ann Barbier was recently at the North American CF Conference where she talked to Laura Bonnell about the exciting work they’re doing for people with CF. Translate Bio, a leading biotechnology company, focuses on pioneering the translation of RNA science into therapeutics, promoting healthy gene expression in people living with debilitating genetic diseases.
We talked with Dr. Colleen Barry about everything from prior authorization, to the future of CSHCS, carved out drugs fee for service and how new drugs like Trikafta will be covered. You’ll be “in the know” after you listen to this podcast.
In this podcast Laura Bonnell talks with Dr. Ahmet Uluer of Boston Children’s Hospital and Brigham and Women’s CF center in Boston where he is the Adult Program Director. The Bonnell Foundation embraces Dr.Uluer ‘s love for the CF community, his time commitment to the CF community, along with his wealth of knowledge about CF that he shares with all of us so freely. We spoke at the North American Cystic Fibrosis Conference in Nashville, TN about a week after Trikafta was approved by the FDA (Oct. 21st, 2019).
Just over a week after Trikafta (Vertex Pharma) was approved by the FDA, five months ahead of schedule, five thousand people from the CF community were in Nashville, TN to attend the North American CF Conference. As the Founder/President of The Bonnell Foundation and mother of two daughters with cystic fibrosis I was thrilled to interview National Institute of Health (NIH) Director Dr. Francis Collins.
Singer/Musician Kevf has CF. His story will inspire you, and you’ll want to attend one of his concerts.
Karma was at work when Musician Jill Jack called me to say she wanted me to meet a singer/musician named Kevf. His voice was amazing she told me, and by the way, he has cystic fibrosis. I shouldn’t be surprised anymore that everything CF comes my way. But I was! We have a big Gala event coming up September 28th, 2019 and I wanted Kevf to sing at our fundraiser. He agreed. His story and music will give you chills and make you smile.
The movie Five Feet Apart was inspired by Claire Wineland. The movie’s main character, Stella, showcases Claire’s charismatic and fighting personality. In this honest, raw, and often emotional conversation, Laura talks to her mom, Melissa Nordquist Yeager, about Claire, Five Feet Apart, and life without her daughter. Claire Wineland lost her battle with Cystic Fibrosis in September of 2018, before the release of Five Feet Apart. It’s a frank, touching and inspirational conversation. Melissa also discusses her ever changing role as the founder and Executive Director of the Claire’s Place Foundation which donates to children and families affected by Cystic Fibrosis.
CF Attorney and patient Beth Sufian explains the legal pitfalls of dealing with Cystic Fibrosis and the important differences between Medicare, Medicaid, and Social Security.
Dylan Mortimer, a 40 year old CF patient and artist, talks to Laura about how Cystic Fibrosis has inspired his art and positive spirit.
Laura Bonnell is joined by Michigan CF Moms Sam and Kim to discuss their journeys and shared experiences.
Laura Bonnell will take you inside the world of Living With Cystic Fibrosis.
This is a podcast with Dr. Francis Collins, Director of the National Institute of Health (NIH). He discovered the gene that causes cystic fibrosis in 1989 at the the University of Michigan in cooperation with a handful of other scientists. Dr. Collins recently received the Warren Alpert Foundation prize. The second part of this podcast is with Emily,
Co-found of Emily’s Entourage. She is 33 years old and has cystic fibrosis. With the help of her friend she got 5 broadway actors/singers to make a video about CF.
Hear their story:
This is 29 year old Kristina Caudill. She has cystic fibrosis. I (Laura Bonnell) met with her Monday to talk about how many times her managed medicaid plan denied her request to get on Orkambi, an approved drug for CF by the FDA (July). Caudill and her CF doctor will try for a 5th time to get her on the medication. The state medicaid panel met Tuesday and after months of people advocating to get the drug approved, the panel made a recommendation to have it listed as an acceptable drug. The state Director, Chris Priest (approachable, media accessible and with a desire to help) says it won’t be a long wait but couldn’t say exactly when it will be in the hands of the approximately 30 people who don’t have access to the meds. These are people on average whose yearly income is below $30,000. I also talked to Governor Snyder today and he said the new drugs coming out for people with CF and other diseases is exciting. As Priest stated, and the Governor agreed, they have to listen to the recommendation of the panel (and they approved it), pay attention to costs and talk with legislators.
Listen to the audio of Laura and Kristina’s talk:
Public Service Announcements heard on CBS radio stations in Detroit 2012-13 (coming soon)
Listen to the public service announcements heard on WWJ Newsradio 950 – May is CF Awareness month.[audio:https://thebonnellfoundation.org/wp-content/uploads/2012/05/Bonnell-PSA-30-w-music.mp3|titles=CF Awareness month]
[audio:https://thebonnellfoundation.org/wp-content/uploads/2012/05/Bonnell-PSA-60-w-music.mp3|titles=CF Awareness month]
WJR’s Paul W. Smith interviews Molly and Emily Bonnell about cystic fibrosis.[audio:https://thebonnellfoundation.org/wp-content/uploads/2010/10/Bonnell-121510.mp3|titles=Paul W. Smith WJR Interviews Molly & Emily]