Emily (far right) hangs out with her sister (green scarf).  Emily can’t wait to get her picc line out but has had a wonderful snow day, full of fun outside!  She jumped off the swing set, making sure to land on the arm with out the picc line.  She built an igloo and...

Emily is recovering nicely from pneumonia.  She has her 8th picc line in.  She is a rock star!  An amazing girl.  So strong.  So behind in homework after missing two weeks of school! There is so much going on in the world of CF.  The March on Hill is in March.  We...

We know not everyone is having a healthy holiday, so we are very thankful the girls are healthy.  Usually by now Emily has been hospitalized, but besides a cold, no bad health news to report!  We’re wishing everyone a Happy New year.

The PFT lab is where we always find out how we’re doing. Emily has had such a struggle with her pulmonary function test.  We have had to increase the amount she does them, be consistent and not let her do anything else until they’re through.  What are you doing to...

We’re calling every CF clinic in the U.S. to see if they’ll hand out flyers for the CF calendar.  Our hope is that people will want to be in the calendar, buy them so we can make huge donations to CF research and start a movement of education for parents who have...

Working hard to get the word out about our Foundation.  We’re selling the Portraits of cystic fibrosis calendars.  This is our biggest fundraiser. We’re hoping to raise money so that we can donate to CF research.  We will donate to the CF Foundation, Children’s...