by Laura Bonnell | Mar 26, 2023 | Media/Press
ViewPoints: Patients with cystic fibrosis not alone in grappling with payer copay adjustment programmes by Jessica D’Amico Like so many others among the 40,000 Americans living with cystic fibrosis (CF), Molly and Emily Bonnell were waiting for a cure. While the...
by Laura Bonnell | Mar 6, 2023 | Podcasts
People getting married who have CF. We don’t hear it happening very often. We’ve always been told that people with CF should not be in the same room, unless they are 6 feet apart. This is impossible to do if you have children with the disease, and of course if you...
by Laura Bonnell | Feb 27, 2023 | Podcasts
Does your CF clinic offer a place for you to express your concerns and successes about CF? The University of Michigan Medical Center started a zoom program during the pandemic that allowed its adult patients with CF to discuss what’s on their mind. The topics...
by Laura Bonnell | Feb 20, 2023 | Podcasts
Imagine having children with CF and living in another country. In your country they don’t have any CF medications, and maybe only a handful of people have been diagnosed with the disease. Even testing equipment is difficult to come by. Doctors in your country...
by Laura Bonnell | Feb 13, 2023 | Podcasts
Indubious. Live Indubiously. Indubians. What am I talking about? The band Indubious was founded by two brothers, 38 years old Evan Burton and 41 year old Skip Burton. Both happen to have CF. They recently released an incredible documentary about their CF journey. Both...
