by Laura Bonnell | Feb 13, 2023 | Podcasts
Indubious. Live Indubiously. Indubians. What am I talking about? The band Indubious was founded by two brothers, 38 years old Evan Burton and 41 year old Skip Burton. Both happen to have CF. They recently released an incredible documentary about their CF journey. Both...
by Laura Bonnell | Feb 6, 2023 | Podcasts, Uncategorized
Almost everyone in the CF community knows who Andy Lipman is and all the contributions he has made. Andy, and his older sister Wendy were born with cystic fibrosis. Wendy died when she was only 16 days old. The Lipman family founded The Wish for Wendy Foundation, in...
by Laura Bonnell | Jan 30, 2023 | Podcasts
Dr. Harutai Kamalaporn sees 12 of the 30 patients diagnosed with CF in Thailand. The challenges she faces are: lack of medications, equipment and sweat chloride tests at all three hospitals. Dr. Kamalaporn continues to advocate for more testing machines. Some...
by Laura Bonnell | Jan 23, 2023 | Podcasts
If you are taking one of Vertex’s medications, you may be aware that the GPS program at Vertex recently made changes to its co-pay assistance program. In September of 2022, a patient advocate at Vertex reached out to The Bonnell Foundation. The reason for the Zoom...
by Laura Bonnell | Jan 22, 2023 | Media/Press
“It’s Your Community” | Sundays 6 to 6:30 a.m. Each Week, WJR‘s “It’s Your Community” focuses on the names, faces, and happenings that are affecting our community. Join your host Vanessa Denha Garmo as she meets with community leaders, experts, and insiders to ask the...
