by Guest Author | Mar 18, 2024 | Podcasts
Aliyah Novelli was diagnosed with cystic fibrosis as an infant. Today, she’s paying it forward as a social worker at Jefferson Adult CF center in Philadelphia. Aliyah is full of enthusiasm about her new program: mindfulness. The CF Foundation awarded her with a...
by Laura Bonnell | Mar 11, 2024 | Podcasts
Canadian, Vicky Maldonado is the mother of a young boy living with a rare genetic form of CF. Sebastian is 6 years old, and a twin. The road to diagnosis was challenging. Sebastian was diagnosed with two rare CF genes after repeated respiratory infections and two...
by Laura Bonnell | Mar 4, 2024 | Podcasts
A better future for health for: All of Us! Dr. Josh Denny is the All of Us Research program, CEO. A program that comes from the National Institute of Health. The Bonnell Foundation is all about Science and Innovation! And he has a CF connect via his father! The goal...
by Laura Bonnell | Feb 26, 2024 | Podcasts
(Please follow us wherever you get your podcasts, rate us and/or comment. Thank you) Part of the Bonnell mission, while doing these podcasts, is to raise awareness and shine the light on other Foundations who are also doing great things. Today we’re going to tell you...
by Laura Bonnell | Feb 19, 2024 | Podcasts
This is our third podcast with Alan Klein, the Chief Development Officer at Healthwell. As a reminder, Healthwell was paying about $25 million each year for CF co-pays in therapeutics. But because of the lack of funding from their corporate sponsors they stopped...
by Laura Bonnell | Feb 12, 2024 | Podcasts
(Please consider subscribing to our podcast and rating it. It helps us with promotion. Thank you) What a treat for all of us today. Nicholas Kelly is in the house. I’ve wanted him on our podcast for a while. Nick was diagnosed with CF when he was 3 months old....