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Healthwell again open to CF patients

This is our third podcast with Alan Klein, the Chief Development Officer at Healthwell. As a reminder, Healthwell was paying about $25 million each year for CF co-pays in therapeutics. But because of the lack of funding from their corporate sponsors they stopped...

The extraordinary, Nick Kelly.

(Please consider subscribing to our podcast and rating it. It helps us with promotion. Thank you) What a treat for all of us today. Nicholas Kelly is in the house. I’ve wanted him on our podcast for a while. Nick was diagnosed with CF when he was 3 months old....

Karen McEwan and Laura bond over chronic illness

Karen McEwan’s daughter, Elana, is 20 years old. It’s been a complex journey from birth to today. Elana suffers from a rare, incurable disease called Primary Ciliary Dyskinesia (PCD). This is the first podcast that is not about cystic fibrosis specifically, although...

Two Salty Okes, Rena Barrow’s story

Rena Barrow has two kids with CF, Jarrod is 22 and Jahsir is 3 years old. Over the years she’s witnessed a discrepancy in care for people of color. Even after her 22 year old son was diagnosed, doctors weren’t sure her newborn baby had CF. They told her,...

Dr. Susanna McColley talks health equity

I am excited that all of you will get to meet Dr. Susanna McColley!!!! I was so impressed with her commitment to CF and her incredible medical and life knowledge. Dr. McColley works to promote equitable diagnosis and treatment in cystic fibrosis. As a white person,...

CF Woman climbs Kilimanjaro (Caroline Heffernan)

Caroline Heffernan talks to CF families about all sorts of things, employment, family support, housing issues, cross infection, fertility…you name it. Caroline talks all things CF. As someone with CF she knows what she’s talking about. She’ll even discuss End of Life...