by Laura Bonnell | May 8, 2023 | Podcasts
It’s 2023, surely now people of color are correctly being diagnosed with cystic fibrosis right? Nope. They are still underdiagnosed. We hear about it happening in low income countries, but it’s happening right here in the USA. Rachel Alder was diagnosed...
by Laura Bonnell | May 1, 2023 | Podcasts
The CF community is a small, tight knit group. There are 40-thousand patients with CF in the U.S., and double the amount of parents. many of us in the CF community know each other, or have heard of one another. I did a podcast about CF Vests Worldwide, and todays...
by Laura Bonnell | Mar 6, 2023 | Podcasts
People getting married who have CF. We don’t hear it happening very often. We’ve always been told that people with CF should not be in the same room, unless they are 6 feet apart. This is impossible to do if you have children with the disease, and of course if you...
by Laura Bonnell | Feb 27, 2023 | Podcasts
Does your CF clinic offer a place for you to express your concerns and successes about CF? The University of Michigan Medical Center started a zoom program during the pandemic that allowed its adult patients with CF to discuss what’s on their mind. The topics...
by Laura Bonnell | Feb 20, 2023 | Podcasts
Imagine having children with CF and living in another country. In your country they don’t have any CF medications, and maybe only a handful of people have been diagnosed with the disease. Even testing equipment is difficult to come by. Doctors in your country...
by Laura Bonnell | Feb 13, 2023 | Podcasts
Indubious. Live Indubiously. Indubians. What am I talking about? The band Indubious was founded by two brothers, 38 years old Evan Burton and 41 year old Skip Burton. Both happen to have CF. They recently released an incredible documentary about their CF journey. Both...
