by Laura Bonnell | Apr 1, 2024 | Podcasts
So many people with cystic fibrosis have gut pain. It is often times, debilitating. Dr. Matthew DiMagno and Dr. Jorge Machicado are working to find answers to the suffering of people with CF, and others without. Dr. Machicado is a Clinical Assistant Professor in the...
by Laura Bonnell | Mar 19, 2024 | Media/Press
By WJR 760-AM Let’s get the Rare Disease Advisory Council passed. Thanks to Marie Osborne at WJR radio (along with Tom Jordan) for doing the interview with our Laura Bonnell. The RDAC will help the 1 million people in Michigan with a rare disease. Governoer...
by Laura Bonnell | Mar 11, 2024 | Podcasts
Canadian, Vicky Maldonado is the mother of a young boy living with a rare genetic form of CF. Sebastian is 6 years old, and a twin. The road to diagnosis was challenging. Sebastian was diagnosed with two rare CF genes after repeated respiratory infections and two...
by Laura Bonnell | Mar 4, 2024 | Podcasts
A better future for health for: All of Us! Dr. Josh Denny is the All of Us Research program, CEO. A program that comes from the National Institute of Health. The Bonnell Foundation is all about Science and Innovation! And he has a CF connect via his father! The goal...
by Laura Bonnell | Feb 28, 2024 | Media/Press
By Laura Bonnell, CF Contributor In medical school, future physicians learn how the human body works, about medical procedures, hospital hierarchy, and how to work with patients. What they’re not learning about is current state and federal legislation. I believe...
