by Laura Bonnell | Feb 28, 2024 | Media/Press
By Laura Bonnell, CF Contributor In medical school, future physicians learn how the human body works, about medical procedures, hospital hierarchy, and how to work with patients. What they’re not learning about is current state and federal legislation. I believe...
by Laura Bonnell | Feb 26, 2024 | Podcasts
(Please follow us wherever you get your podcasts, rate us and/or comment. Thank you) Part of the Bonnell mission, while doing these podcasts, is to raise awareness and shine the light on other Foundations who are also doing great things. Today we’re going to tell you...
by Laura Bonnell | Feb 19, 2024 | Podcasts
This is our third podcast with Alan Klein, the Chief Development Officer at Healthwell. As a reminder, Healthwell was paying about $25 million each year for CF co-pays in therapeutics. But because of the lack of funding from their corporate sponsors they stopped...
by Laura Bonnell | Feb 12, 2024 | Podcasts
(Please consider subscribing to our podcast and rating it. It helps us with promotion. Thank you) What a treat for all of us today. Nicholas Kelly is in the house. I’ve wanted him on our podcast for a while. Nick was diagnosed with CF when he was 3 months old....
by Laura Bonnell | Feb 5, 2024 | Podcasts
Karen McEwan’s daughter, Elana, is 20 years old. It’s been a complex journey from birth to today. Elana suffers from a rare, incurable disease called Primary Ciliary Dyskinesia (PCD). This is the first podcast that is not about cystic fibrosis specifically, although...