by Laura Bonnell | Jan 6, 2022 | Blog
The Bonnell Foundation (BF) is grateful to the Delta Dental Foundation for awarding us with grants that allowed us to help two CF patients with much needed dental care. The BF became more aware of the need for dental work in CF patients as we began getting more and...
by Laura Bonnell | Jan 3, 2022 | Podcasts
Joan Galinken is a CF Mom who lives in New Jersey. Her son Jesse is 33 years old, married and a new father. It’s been a long road of ups and downs like the CF journey always is. In the height of the pandemic Jesse got his new lungs. Joan talks about the fear of...
by Laura Bonnell | Nov 29, 2021 | Podcasts
Steven Strickland is 28 years old and he’s dealt with his own mortality more than he’d like. He was hoping to get a double lung transplant, but had to get rid of a deadly bacteria first (not once but 4 times). Then, after waiting years to be listed and...
by Laura Bonnell | Nov 28, 2021 | Media/Press
By Vladislava Sukhanovskaya – Capital News Service About a million Michiganders with rare diseases could receive better treatment if legislators establish a Rare Disease Advisory Council. Read the story here
by Laura Bonnell | Nov 22, 2021 | Podcasts
61 year old Lorna McEwan lives in Saskatchewan, Canada where she is the oldest person living with cystic fibrosis. She’s a well known advocate, working to help CF families. She lost two brothers to the disease and her son. How can she even get out of bed in the...
