by Laura Bonnell | Nov 28, 2021 | Media/Press
By Vladislava Sukhanovskaya – Capital News Service About a million Michiganders with rare diseases could receive better treatment if legislators establish a Rare Disease Advisory Council. Read the story here
by Laura Bonnell | Nov 22, 2021 | Podcasts
61 year old Lorna McEwan lives in Saskatchewan, Canada where she is the oldest person living with cystic fibrosis. She’s a well known advocate, working to help CF families. She lost two brothers to the disease and her son. How can she even get out of bed in the...
by Laura Bonnell | Oct 25, 2021 | Podcasts
Michele Ciancimino is an Integrative Nutrition Certified Holistic Health Coach. Michele provides coaching and support to individuals dealing with Cystic Fibrosis to help them successfully implement the nutrition recommendations of their care team. Inspired by her...
by Laura Bonnell | Aug 24, 2021 | Media/Press
By Amy Lange and David Komer online producer, FOX 2 Detroit FOX 2 – A local family has made it their mission to help those living with cystic fibrosis and this year — their annual fundraiser will return to in-person for their “Night of Hope.”...
by Laura Bonnell | Aug 23, 2021 | Podcasts
CF Dad’s have a lot to say! They don’t gather like CF Mom’s do (on zoom or at a gathering), but they do have a lot on their minds. It was wonderful to get my husband Joseph Bonnell and Pastor David Hoffman together to talk about how Dad’s...