by Laura Bonnell | Jan 2, 2023 | Podcasts
Not everyone with CF enjoys the same level of care. Tragically it depends where you live. Some countries don’t even recognize the disease. If a country doesn’t recognize CF, that means medications aren’t available and there is no health insurance coverage. All of us...
by Laura Bonnell | Jan 1, 2023 | Media/Press, Uncategorized
Living with Cystic Fibrosis podcasts are available and are for anyone who wants to learn and be inspired, even those not associated with a diagnosis of Cystic Fibrosis. Read the feature on page 2 of the Michigan Family Connections Newsletter here
by Laura Bonnell | Dec 13, 2022 | Speaking
Patients are essential partners in developing measurable value in healthcare. Their voices should be heard by all stakeholders in the healthcare continuum – innovators, manufacturers, providers, payers, regulators and policymakers – from scientific discovery to care...
by Laura Bonnell | Dec 5, 2022 | Podcasts
Attorney Jen Weber is 49 years old and waiting to have her third lung transplant. Weber lived in Indiana until this third transplant, when she had to move to Durham, North Carolina to be near her transplant hospital: Duke University Health. Weber also started a...
by Laura Bonnell | Nov 7, 2022 | Podcasts
We’re talking today with the founder of A Kid Again, Kathy Derr. It is a nonprofit organization that plans family adventures in many states across the U.S. and the adventures are free to families. Kathy Derr and two of her friends started the nonprofit camp 25 years...
