Not everyone with CF enjoys the same level of care. Tragically it depends where you live. Some countries don’t even recognize the disease. If a country doesn’t recognize CF, that means medications aren’t available and there is no health insurance coverage. All of us are working together to change the world for people who have CF.
Doing his part is Rod Spadinger who founded CF Vests Worldwide a couple of years ago. Rod has CF and is alive thanks to a double lung transplant. Rod got an email from a girl in Chile who needed a vest, and the idea was born from that first email. Rod recently brought on his Vice President Josh Bauder. Josh’s daughter Evangeleen has CF. Josh and his wife run a children’s home in Chiang Mai, Thailand. Josh, an American is married to Chitty, who is Thai. The couple has witnessed first-hand the struggles of raising a child in Thailand, the care and medications are not the same.
The Bonnell Foundation website: https://thebonnellfoundation.org
The Bonnell Foundation email: firstname.lastname@example.org
CF Vests Worldwide Website: https://www.cfvww.org/
CF Vests Worldwide Facebook: https://www.facebook.com/CFVestsWorldwide
CF Vest Worldwide YouTube: https://www.youtube.com/channel/UCdLSDUZyIduG_LI8OIwWJXw