by Guest Author | Oct 2, 2020 | Videos
When the pandemic hit our country and Michigan most people were not stocked up on disinfectant wipes and other PPE. The cystic fibrosis community was scared because they regularly required N95 masks and PPE. We didn’t realize there would be a shortage, and panic set...
by Guest Author | Mar 3, 2020 | Podcasts
When you think about cystic fibrosis, you probably think about the patient, and the parents who take care of them until they’re adults. But what about a patient’s spouse or partner? When a person starts dating someone with CF they probably don’t know...
by Guest Author | Dec 20, 2019 | Podcasts
Translate Bio’s Chief Medical Officer, Dr. Ann Barbier was recently at the North American CF Conference where she talked to Laura Bonnell about the exciting work they’re doing for people with CF. Translate Bio, a leading biotechnology company, focuses on...
by Guest Author | Dec 9, 2019 | Podcasts
We talked with Dr. Colleen Barry about everything from prior authorization, to the future of CSHCS, carved out drugs fee for service and how new drugs like Trikafta will be covered. You’ll be “in the know” after you listen to this podcast.
by Guest Author | Nov 26, 2019 | Videos
This is the video of Emily getting the newly approved medication Trikafta that they have waited 24 years for. Emily’s Mom surprised her at an MSU tailgate with the new drug. Emily had no idea when it would arrive and she said she wouldn’t believe it until...
