by Guest Author | Dec 9, 2019 | Podcasts
We talked with Dr. Colleen Barry about everything from prior authorization, to the future of CSHCS, carved out drugs fee for service and how new drugs like Trikafta will be covered. You’ll be “in the know” after you listen to this podcast.
by Guest Author | Nov 26, 2019 | Videos
This is the video of Emily getting the newly approved medication Trikafta that they have waited 24 years for. Emily’s Mom surprised her at an MSU tailgate with the new drug. Emily had no idea when it would arrive and she said she wouldn’t believe it until...
by Guest Author | Nov 26, 2019 | Podcasts
In this podcast Laura Bonnell talks with Dr. Ahmet Uluer of Boston Children’s Hospital and Brigham and Women’s CF center in Boston where he is the Adult Program Director. The Bonnell Foundation embraces Dr.Uluer ‘s love for the CF community, his...
by Guest Author | Nov 25, 2019 | Media/Press
Emily and Laura Bonnell are supporting the Exocrine Pancreatic Insufficiency Coalition. See their commercials. Emily Bonnell tells the story of her life with Cystic Fibrosis (CF) and Exocrine Pancreatic Insufficiency (EPI). Laura Bonnell shares her story of being the...
by Guest Author | Jul 30, 2019 | Podcasts
Karma was at work when Musician Jill Jack called me to say she wanted me to meet a singer/musician named Kevf. His voice was amazing she told me, and by the way, he has cystic fibrosis. I shouldn’t be surprised anymore that everything CF comes my way. But I was!...
