by Guest Author | Jun 8, 2026 | Podcasts, Uncategorized
Chrisy and Dr. Kingzett, two women I met when we were all trying to raise our rare voices a little louder. Christine “Chrisy” Klavitter and Dr. Kristen Kingzett are both rare disease advocates, but more importantly, they are people living this reality every single...
by Guest Author | Jun 1, 2026 | Podcasts
“Behind every breakthrough are countless failures no one ever sees—but that’s exactly what makes progress possible.” Dr. Thomas Kaiser. When I have scientists on the podcast: they’re some of the coolest, smartest, funniest people, and they’re always willing (and...
by Guest Author | May 25, 2026 | Podcasts
Living Fully with CF: Christopher Cornejo’s Journey from Diagnosis to Avatar This fast-moving and deeply engaging conversation features Christopher Cornejo, who brings a fresh and powerful voice to the cystic fibrosis community. Diagnosed with CF as an adult just...
by Guest Author | May 18, 2026 | Podcasts
A mother, advocate and one woman’s global fight for access. Beth Vanstone is working to ensure rare disease patients don’t have to wait for the treatments they need to survive. Sometimes the most powerful friendships begin in the most unexpected places. Beth...
by Guest Author | May 13, 2026 | News
We will never stop advocating for people with CF and rare diseases. The future is determined by all of us — for those who will live beyond us. Let’s make sure they have fair laws that protect them. That’s what we think about: what will happen when...
