by Guest Author | Oct 26, 2026 | Podcasts
What happens when doctors, researchers, CF families, friends, and supporters come together in one room? You get an incredible night of connection, stories, laughter, and hope. In this special Bonnell Foundation podcast, I’m bringing you conversations from our Sweet 16...
by Guest Author | Oct 19, 2026 | Podcasts
I first met Stacey Fogarty-Brown when I decided to travel to Egypt to meet CF families and learn more about the CF community there. Stacey joined me on that journey, and together we saw firsthand the challenges facing people with CF around the world. Stacey is a...
by Guest Author | Oct 12, 2026 | Podcasts
A Lucky Diagnosis on Friday the 13th Friday the 13th is supposed to be unlucky. But for today’s guest, it may have been one of the luckiest days of her life. Chloe was diagnosed with cystic fibrosis just 13 days after she was born, on Friday the 13th. That diagnosis...
by Guest Author | Oct 5, 2026 | Podcasts
I met Lea Goldberger, the CEO of the Cystic Fibrosis Association of Israel at a conference in Lisbon, Portugal. The European CF Society Conference. She was not always in nonprofit leadership; she spent many years working in Israel’s high-tech and product world. She...
by Guest Author | Sep 28, 2026 | Podcasts
Rare disease connects more people than many of us realize. While every diagnosis is unique, the journey often includes many of the same challenges: searching for answers, navigating the healthcare system, advocating for better care, managing complex treatments, and...
