by Guest Author | Oct 5, 2026 | Podcasts
I met Lea Goldberger, the CEO of the Cystic Fibrosis Association of Israel at a conference in Lisbon, Portugal. The European CF Society Conference. She was not always in nonprofit leadership; she spent many years working in Israel’s high-tech and product world. She...
by Guest Author | Sep 28, 2026 | Podcasts
Rare disease connects more people than many of us realize. While every diagnosis is unique, the journey often includes many of the same challenges: searching for answers, navigating the healthcare system, advocating for better care, managing complex treatments, and...
by Guest Author | Sep 21, 2026 | Podcasts
I Was Wide Awake for Dr. Kimberly Canter’s Presentation on Sleep and Cystic Fibrosis I was wide awake during a presentation about sleep, but that’s exactly what happens when you hear Dr. Kimberly Canter speak about the connection between sleep and cystic fibrosis. As...
by Guest Author | Sep 17, 2026 | Media/Press, Videos
The purpose of The Bonnell Foundation is to provide tools to navigate the difficulties of living with cystic fibrosis. Their gala is on Sept. 19. Watch interview on Fox 2...
by Guest Author | Sep 15, 2026 | Media/Press
Recent proposals from the U.S. Food and Drug Administration (FDA) to expand disclosure requirements in drug ads could overwhelm patients and families and make information harder to use, writes Laura Bonnell in 535.news....
