by Guest Author | Apr 14, 2025 | Inspirational Stories
My son Tim is 41 years old and lives with both cystic fibrosis and autism. His CFTR mutations are exceptionally rare—it’s quite possible he’s the only person in the world with this particular combination. Thankfully, the life-saving medication Trikafta...
by Guest Author | Apr 7, 2025 | Podcasts
CFRI’s Executive Director, Siri Vaeth is sunshine to me. She’s a dear friend. We met after Siri took on her role with the Cystic Fibrosis Research Institute. I consider Siri a dear friend, and a mentor. Siri is truly among the smartest people I know. She is an...
by Guest Author | Mar 24, 2025 | Podcasts
I love that I was able to bump into Aaron Trumm via an email. He reached out to check in about our scholarship program for college. We only award grants to undergrad students, but I was intrigued by all I learned about him. Aaron has CF, he is post-transplant, he...
by Guest Author | Mar 10, 2025 | Podcasts, Uncategorized
CF Dad Bob Coughlin see’s a cure in the future for his son, and all of our kids. His high energy in this podcast is contagious. In this conversation, Laura Bonnell and Bob Coughlin discuss the journey of Bob’s son, Bobby, who has cystic fibrosis. They...
by Guest Author | Mar 4, 2025 | Media/Press, News
Anyone living with a rare disease wants access to care — not just substandard healthcare, but healthcare that will keep them alive and healthy. Sadly, this is often not the case for so many patients. I am Laura Bonnell, the mother of two daughters with cystic...
