by Guest Author | Mar 25, 2024 | Podcasts
Maureen Electa Monte and I go … way back! When she was an engineer and doing photography, she photographed our first Portraits of cystic fibrosis black and white calendar in 2003. The wives of the Detroit Tigers, pretty much all of them pregnant, played in our...
by Guest Author | Mar 19, 2024 | Speaking
The Ohio Valley CF Consortium unites scientists (clinical and basic research) together from CF Clinics in Michigan, Ohio, Pennsylvania, Indiana, Kentucky and West Virginia. There is an exchange of ideas, and so much always comes from this conference. This year The...
by Guest Author | Mar 18, 2024 | Podcasts
Aliyah Novelli was diagnosed with cystic fibrosis as an infant. Today, she’s a licensed social worker practicing as a child and family therapist at The Center for Change and Growth in Ardmore, PA. Aliyah is full of enthusiasm about her new program: mindfulness....
by Guest Author | Jul 31, 2023 | Podcasts
Melodie Ramone and I met on Twitter, before the pandemic. Melodie was supporting all my posts and I wondered why, did she have a CF connection? She was, as it turns out, supportive of the CF community, but had no direct connection. The people with CF and their...
by Guest Author | Jul 3, 2023 | Podcasts
This is a love story about two people passionate about entertainment, writing and each other. In 2016 Clement ‘Clem’ Souyri, moved from Versaille, France to the United States. Clem is a lawyer who specializes in entertainment law. His career path landed him in the...