by Guest Author | Jan 20, 2025 | Podcasts, Uncategorized
I have known Becky Penuel for many years. Becky used to run Miles for cystic fibrosis and then merged her nonprofit with Brian Callanan’s nonprofit, CF Life Fitness. After the merger, the nonprofit name is now: BreatheStrong. Becky is the Executive Director and was...
by Laura Bonnell | Dec 17, 2023 | Media/Press, Uncategorized
For those of us who have loved ones living with a currently incurable disease, our hopes of finding a cure are at risk due to unintended consequences of policy changes by lawmakers in Lansing and Washington D.C. Read the full article here
by Laura Bonnell | Nov 18, 2023 | Advocating for CF, Speaking, Uncategorized
It was an exciting time in Washington, D.C. on November 14th and 15th. Bonnell Foundation CEO, Laura Bonnell traveled to our nation’s Capital to speak at the Rare Action Access Project (RAAP). Laura talked about the importance of passing the Rare Disease...
by Laura Bonnell | Sep 29, 2023 | Media/Press, Uncategorized
Senate Democrats took their first step Wednesday toward the creation of its proposed Prescription Drug Affordability Board by reporting legislation from the Senate Finance, Insurance and Consumer Protection Committee. All three bills (SB 483 Track, SB 484 Trackand SB...
by Laura Bonnell | Apr 3, 2023 | Blog, Uncategorized
I recently had an amazing opportunity to visit and experience the Vertex Pharmaceuticals campus in San Diego. What an unbelievable opportunity to see and experience many of the people, the labs, the technology, and the beauty of a building that was created with such...
by Laura Bonnell | Apr 3, 2023 | Media/Press, Uncategorized
By Samya Nasr, MD, Director, Cystic Fibrosis Center It was always thought by the Egyptian Medical Society that CF does not exist in Egypt. One major problem has been the lack of the physicians’ awareness of the disease. Addressing that issue began in 1997, first...
