by Laura Bonnell | Jan 25, 2021 | Podcasts
Thirty five year old Anas Mansour has 5 year old twin boys with cystic fibrosis. He lives in Cairo, Egypt. Mansour and his wife are trying to keep the boys as healthy as possible, but it is challenging. The disease isn’t officially recognized yet in Egypt, so...
by Laura Bonnell | Jan 25, 2021 | Podcasts
In this episode Laura Bonnell talks with Dr. Samya Nasr, Director of the CF Clinic at the University of Michigan hospital, and Professor of Pediatrics. In 1997 Dr. Nasr began talking to doctors in her native country of Egypt about the fact that many CF patients were...
by Laura Bonnell | Sep 18, 2020 | Podcasts
Bike to Breath is coming up quickly (Monday the 21st of September through Friday the 25th). Two friends of the Bonnell Foundation, and the CF Community are getting on their bikes and riding from Boston to Pennsylvania to raise awareness about cystic fibrosis. This is...
by Laura Bonnell | Sep 10, 2020 | Podcasts
CF Mom Beth Vanstone has an 18 year old daughter with cystic fibrosis. Beth and Laura talk about the challenges people with CF we face in both Country’s. They talk about the Institute for Clinical and Economic review (ICER) and the discriminatory impact that the...
by Laura Bonnell | May 15, 2020 | Podcasts
Laura Bonnell (Detroit), Kat Porco (Montana), Jen Caruso (Delaware) and Siri Vaeth (California) have have 5 children with cystic fibrosis between them. The kids are ages 14 to 25 years old. This CF Tribe of Moms has seen a lot. All of us have almost lost our kids to...
by Laura Bonnell | May 8, 2020 | Podcasts
I am so proud to bring you our CF partners from around the Country, (Siri Vaeth, CFRI, Inc., Lee Becker and Jerry Cahill, Boomer Esiason Foundation, Brian Callanan, CFLF and Emily Schaller, Rock CF Foundation) we do our individual work with our respective CF...
