by Guest Author | Dec 9, 2019 | Podcasts
We talked with Dr. Colleen Barry about everything from prior authorization, to the future of CSHCS, carved out drugs fee for service and how new drugs like Trikafta will be covered. You’ll be “in the know” after you listen to this podcast.
by Guest Author | Nov 26, 2019 | Podcasts
In this podcast Laura Bonnell talks with Dr. Ahmet Uluer of Boston Children’s Hospital and Brigham and Women’s CF center in Boston where he is the Adult Program Director. The Bonnell Foundation embraces Dr.Uluer ‘s love for the CF community, his...
by Laura Bonnell | Nov 14, 2019 | Podcasts
Just over a week after Trikafta (Vertex Pharma) was approved by the FDA, five months ahead of schedule, five thousand people from the CF community were in Nashville, TN to attend the North American CF Conference. As the Founder/President of The Bonnell Foundation and...
by Guest Author | Jul 30, 2019 | Podcasts
Karma was at work when Musician Jill Jack called me to say she wanted me to meet a singer/musician named Kevf. His voice was amazing she told me, and by the way, he has cystic fibrosis. I shouldn’t be surprised anymore that everything CF comes my way. But I was!...
by Guest Author | Mar 28, 2019 | Podcasts
The movie Five Feet Apart was inspired by Claire Wineland. The movie’s main character, Stella, showcases Claire’s charismatic and fighting personality. In this honest, raw, and often emotional conversation, Laura talks to her mom, Melissa Nordquist Yeager, about...
by Guest Author | Feb 19, 2019 | Podcasts
CF Attorney and patient Beth Sufian explains the legal pitfalls of dealing with Cystic Fibrosis and the important differences between Medicare, Medicaid, and Social Security.
