by Laura Bonnell | May 22, 2023 | Podcasts
The CF Legal Information Hotline. A brilliant idea. The woman who made it happen is 57 year old Beth Sufian, who has CF. Attorney Beth Sufian works just about around the clock helping and answering questions from people in the CF community. On the CF Legal Hotline...
by Laura Bonnell | May 15, 2023 | Podcasts
We need to education and come up with solutions to help the people of India with cystic fibrosis. Facts of CF in India: There are 40,000 people diagnosed with CF in the U.S. and 70,000 worldwide, but the Bonnell Foundation is certain those numbers are low. CF doctors...
by Laura Bonnell | May 8, 2023 | Podcasts
It’s 2023, surely now people of color are correctly being diagnosed with cystic fibrosis right? Nope. They are still underdiagnosed. We hear about it happening in low income countries, but it’s happening right here in the USA. Rachel Alder was diagnosed...
by Laura Bonnell | May 1, 2023 | Podcasts
The CF community is a small, tight knit group. There are 40-thousand patients with CF in the U.S., and double the amount of parents. many of us in the CF community know each other, or have heard of one another. I did a podcast about CF Vests Worldwide, and todays...
by Laura Bonnell | Mar 6, 2023 | Podcasts
People getting married who have CF. We don’t hear it happening very often. We’ve always been told that people with CF should not be in the same room, unless they are 6 feet apart. This is impossible to do if you have children with the disease, and of course if you...
by Laura Bonnell | Feb 27, 2023 | Podcasts
Does your CF clinic offer a place for you to express your concerns and successes about CF? The University of Michigan Medical Center started a zoom program during the pandemic that allowed its adult patients with CF to discuss what’s on their mind. The topics...
