by Guest Author | Jun 26, 2023 | Podcasts
54 years ago when Canadian, Lisa Bentley was born, enzymes weren’t even in pill form. Diagnosed at age 20, Lisa was already in the midst of figuring out her life as a teacher and later, a world famous triathlete. She had 11 IRONMAN victories on several...
by Laura Bonnell | Jun 19, 2023 | Podcasts
CF in the family. Making it your life’s purpose. Then The Crossing for cystic fibrosis, from the Bahamas to Florida was born. Travis’ parents didn’t know they had three children with CF. When Travis’s daughter Piper was always sick, CF...
by Guest Author | Jun 12, 2023 | Podcasts
In January, The American Thoracic Society (ATS) held a webinar about the challenges facing CF families in low-income countries. Drs. Samya Nasr and Grace Paul were key participants in the webinar. Two doctors who have been featured on this podcast. This is where I...
by Laura Bonnell | Jun 5, 2023 | Podcasts
The Live Fearlessly Foundation? It’s the creation of Jacob Venditti. Jacob is a surfer and lover of life. He’s also a social impact entrepreneur, community builder, multimedia producer, keynote speaker, and passionate advocate for the cystic fibrosis community....
by Laura Bonnell | May 29, 2023 | Podcasts
Laura Bonnell, the Host of the Living with cystic fibrosis podcast, does a solo podcast this time around. This is her story, life without CF, diagnosis (here comes CF ready or not) and starting a Foundation. It turns out that her path was always aligned with cystic...
by Laura Bonnell | May 22, 2023 | Podcasts
The CF Legal Information Hotline. A brilliant idea. The woman who made it happen is 57 year old Beth Sufian, who has CF. Attorney Beth Sufian works just about around the clock helping and answering questions from people in the CF community. On the CF Legal Hotline...
