by Laura Bonnell | Jul 10, 2023 | Podcasts
The CF community is a small one. It’s made up of 40,000 people with the disease in the U.S. When you add two parents to the mix that’s 80,000 parents, then there are grandparents, siblings, Aunt and Uncles, friends and you get the picture. We have a small, tight knit...
by Guest Author | Jul 3, 2023 | Podcasts
This is a love story about two people passionate about entertainment, writing and each other. In 2016 Clement ‘Clem’ Souyri, moved from Versaille, France to the United States. Clem is a lawyer who specializes in entertainment law. His career path landed him in the...
by Guest Author | Jun 26, 2023 | Podcasts
54 years ago when Canadian, Lisa Bentley was born, enzymes weren’t even in pill form. Diagnosed at age 20, Lisa was already in the midst of figuring out her life as a teacher and later, a world famous triathlete. She had 11 IRONMAN victories on several...
by Laura Bonnell | Jun 19, 2023 | Podcasts
CF in the family. Making it your life’s purpose. Then The Crossing for cystic fibrosis, from the Bahamas to Florida was born. Travis’ parents didn’t know they had three children with CF. When Travis’s daughter Piper was always sick, CF...
by Guest Author | Jun 12, 2023 | Podcasts
In January, The American Thoracic Society (ATS) held a webinar about the challenges facing CF families in low-income countries. Drs. Samya Nasr and Grace Paul were key participants in the webinar. Two doctors who have been featured on this podcast. This is where I...
by Laura Bonnell | Jun 5, 2023 | Podcasts
The Live Fearlessly Foundation? It’s the creation of Jacob Venditti. Jacob is a surfer and lover of life. He’s also a social impact entrepreneur, community builder, multimedia producer, keynote speaker, and passionate advocate for the cystic fibrosis community....
