by Guest Author | Jun 15, 2026 | Podcasts
“Take in your final breath before your first new one.” Those were the words Jillian heard before her double lung transplant—words that would mark the end of one life chapter and the beginning of another. Jillian is 34 years old, living with cystic fibrosis, and a...
by Guest Author | Jun 8, 2026 | Podcasts, Uncategorized
Chrisy and Dr. Kingzett, two women I met when we were all trying to raise our rare voices a little louder. Christine “Chrisy” Klavitter and Dr. Kristen Kingzett are both rare disease advocates, but more importantly, they are people living this reality every single...
by Guest Author | Jun 1, 2026 | Podcasts
“Behind every breakthrough are countless failures no one ever sees—but that’s exactly what makes progress possible.” Dr. Thomas Kaiser. When I have scientists on the podcast: they’re some of the coolest, smartest, funniest people, and they’re always willing (and...
by Guest Author | May 25, 2026 | Podcasts
Living Fully with CF: Christopher Cornejo’s Journey from Diagnosis to Avatar This fast-moving and deeply engaging conversation features Christopher Cornejo, who brings a fresh and powerful voice to the cystic fibrosis community. Diagnosed with CF as an adult just...
by Guest Author | May 18, 2026 | Podcasts
A mother, advocate and one woman’s global fight for access. Beth Vanstone is working to ensure rare disease patients don’t have to wait for the treatments they need to survive. Sometimes the most powerful friendships begin in the most unexpected places. Beth...
by Guest Author | May 11, 2026 | Podcasts
Bridging Two Countries, One Mission: Cesar and Nora Hernandez Fight for Spanish-Speaking CF Families“When Alex was diagnosed, we felt fear and responsibility. If we had access to information in Spanish, other families should too. No one should feel lost because of...
