by Laura Bonnell | Oct 16, 2023 | Media/Press
A consistent topic of today’s political debate is the cost of health care and how to lower these costs, including drug prices. The debate often focuses on patients with complex health needs, who also face higher bills for their care. What I continue to find puzzling...
by Laura Bonnell | Oct 16, 2023 | Podcasts
Dr. Jennifer Taylor-Cousar is an amazing woman I can’t wait to meet in person one day. She is a Board Certified Pediatric and adult pulmonologist at National Jewish Health in Colorado. She’s a rock star in the world of CF, and she’s doing incredible work raising...
by Laura Bonnell | Oct 13, 2023 | Advocating for CF, Speaking
Laura spoke about The Bonnell Foundation and advocacy. The Prescription Drug Advisory Board (PDAB) is a hot topic. The rare disease community does not want it passed, but it sailed quickly through the Senate. We’ve given amendments that include the patient...
by Laura Bonnell | Oct 12, 2023 | Advocating for CF, Speaking
Laura advocates at the Lansing Capitol. She testified before the Senate Health Policy Committee, asking Senators to pass the Rare Disease Advisory Council (RDAC). This will give all stakeholders (Insurance, Pharma, patients, parents, doctors, etc). Laura was in good...
by Laura Bonnell | Oct 9, 2023 | Podcasts
Emily Lyons is not yet 40 years old (she’s 37 years old) and is a multimillionaire. But her life has not been easy. Her story is incredible, she’s actually writing a book about it. She dropped out of high school at 16 years old, worked as a nanny for a bit...
