by Laura Bonnell | Oct 12, 2023 | Advocating for CF, Speaking
Laura advocates at the Lansing Capitol. She testified before the Senate Health Policy Committee, asking Senators to pass the Rare Disease Advisory Council (RDAC). This will give all stakeholders (Insurance, Pharma, patients, parents, doctors, etc). Laura was in good...
by Laura Bonnell | Oct 9, 2023 | Podcasts
Emily Lyons is not yet 40 years old (she’s 37 years old) and is a multimillionaire. But her life has not been easy. Her story is incredible, she’s actually writing a book about it. She dropped out of high school at 16 years old, worked as a nanny for a bit...
by Laura Bonnell | Oct 2, 2023 | Podcasts
Please subscribe, rate our podcast and comment. thank you. Marten De Vlieger do you know what he did or who he is? I am excited to let you know. He is an adventure and sports athlete. He’s 41 years old with CF. Marin worked with HillRom, which is now Baxter, to make...
by Laura Bonnell | Sep 29, 2023 | Media/Press, Uncategorized
Senate Democrats took their first step Wednesday toward the creation of its proposed Prescription Drug Affordability Board by reporting legislation from the Senate Finance, Insurance and Consumer Protection Committee. All three bills (SB 483 Track, SB 484 Trackand SB...
by Laura Bonnell | Sep 25, 2023 | Podcasts
Please consider subscribing, rating and commenting on our podcast (Spotify). But you can hear our podcasts anywhere. We’re traveling 9 hours by plane for this podcast to the lush green grass of Dublin, Ireland. You may want to pour yourself a Guiness for this podcast...
