by Laura Bonnell | Mar 7, 2022 | Podcasts
Mallory Smiths book, Salt in my Soul was published posthumously by her mother, Diane Shader Smith (husband Mark) after she died from CF at the age of 25 years old. Smith died after a double lung transplant. So many people have read her book. I bought it years ago, but...
by Laura Bonnell | Mar 1, 2022 | Media/Press
Laura Bonnell, the founder of a foundation bearing her family’s name, is working to make sure people with rare diseases get representation in Michigan. Read the story here
by Laura Bonnell | Feb 28, 2022 | Media/Press
By Institute for Patient Access The 30 million Americans diagnosed with a rare disease represent a large, underserved patient population. Their complex conditions are often poorly understood, and most have no approved treatment. Nevertheless, rare disease patients and...
by Laura Bonnell | Feb 28, 2022 | Podcasts
Bijal Trivedi is a journalist and an author. She spent 8 years writing the book, Breath from Salt. It’s an in-depth look at how parents with CF children banded together to start what is now the Cystic Fibrosis Foundation. Trivedi weaves a beautiful story of all...
by Laura Bonnell | Feb 22, 2022 | Podcasts
Rebekah Farley is someone you may know from Instagram or the QVC channel where she is a Plus size model. Rebekah and her husband Craig,have a 6 year old daughter Madelynn with cystic fibrosis and a son Craig junior who does not have CF. CF Mom’s connect instantly, as...
