Rare but not Alone: 1 in 10 Live with a Rare Disease

By Institute for Patient Access
The 30 million Americans diagnosed with a rare disease represent a large, underserved patient population. Their complex conditions are often poorly understood, and most have no approved treatment. Nevertheless, rare disease patients and advocates are finding purpose, building powerful support systems and working toward better outcomes for the rare disease community. Here are three stories that bear testament to their challenges – and their resilience.
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