by Laura Bonnell | Feb 28, 2022 | Media/Press
By Institute for Patient Access The 30 million Americans diagnosed with a rare disease represent a large, underserved patient population. Their complex conditions are often poorly understood, and most have no approved treatment. Nevertheless, rare disease patients and...
by Laura Bonnell | Feb 28, 2022 | Podcasts
Bijal Trivedi is a journalist and an author. She spent 8 years writing the book, Breath from Salt. It’s an in-depth look at how parents with CF children banded together to start what is now the Cystic Fibrosis Foundation. Trivedi weaves a beautiful story of all...
by Laura Bonnell | Feb 22, 2022 | Podcasts
Rebekah Farley is someone you may know from Instagram or the QVC channel where she is a Plus size model. Rebekah and her husband Craig,have a 6 year old daughter Madelynn with cystic fibrosis and a son Craig junior who does not have CF. CF Mom’s connect instantly, as...
by Laura Bonnell | Feb 12, 2022 | Media/Press, Uncategorized
BioMatters – Winter 2022, Patient Advocate Issue by MichBio – Issuu Read the story here
by Laura Bonnell | Jan 31, 2022 | Podcasts
Gunna Esiason is 30 years old and is living with cystic fibrosis. He inspires his peers in the CF community every single day. If you have seen Gunnar’s blog, follow him on twitter, listened to his podcasts or have read any of his articles in the paper you know he gets...
