by Guest Author | Sep 23, 2024 | Podcasts
We discuss suicide in this podcast. This could be a trigger for some for you. Please remember the National Suicide Hotline can be reached via text or by calling 988. Sorcha Slyvester-Martin from diagnosis to drugs and discovery. When she was three days old, she was...
by Guest Author | Sep 9, 2024 | Podcasts
In this podcast you’ll meet my brother Noah Teicher, and my nephew Colton Teicher. I have two younger brothers, but my brother Noah (the middle child) has two boys who had a rare disease. And we talk about their journey from having a rare disease to being cured....
by Guest Author | Jul 22, 2024 | Podcasts
Diane Shader Smith’s daughter Mallory died from complications of cystic fibrosis 6 years ago. She was 25 years old. Diane initially published her daughter’s diary, “Salt in My Soul”. This book gave insight into how Mallory was feeling during her CF fight....
by Guest Author | Jul 15, 2024 | Podcasts
Children’s Special Health Care Services (CSHCS): Have you heard of it? In the simplest terms, it is defined by the need for specialty care required for your child. It’s not a Medicaid program. Access to the program has nothing to do with your household income. The...
by Guest Author | Jun 17, 2024 | Podcasts
As people with cystic fibrosis live longer, with a life expectancy currently at about 56 years old, many women with CF will be going through menopause. I recently spoke to doctors at a hospital gathering, and recommended they speak to women with CF about menopause....
