by Guest Author | Dec 31, 2024 | Media/Press, News
The newly constituted Michigan Rare Disease Advisory Council (MI RDAC) met in early October 2024 and began its mandate as an advisory body that provides Michigan’s rare disease community with a stronger voice in state government. Read more
by Guest Author | Dec 2, 2024 | Media/Press, News
There are 1 million people in Michigan with a rare disease, (and their family and friends) who will be impacted by passage of the Rare Disease Advisory Council (RDAC). Members of the RDAC are meant to offer advice, direct, and develop recommendations for policy around...
by Guest Author | Jun 12, 2024 | Media/Press, News
“The future of medicine is in the hands of the next generation of medical students I have come to know. They are bright stars, and I am confident in their medical careers” says Laura Bonnell, the CEO of the BonnellFoundation: Living with cystic fibrosis. “I was...
by Laura Bonnell | Dec 28, 2023 | Media/Press, News
by ROBIN SCHWARTZ An Israeli mother of three shares how she’s coping with cystic fibrosis amid the war. Read the article here
by Laura Bonnell | Aug 2, 2022 | News, Videos
Stepping back in time, that’s what it feels like to see what these Egyptian doctors have to work with in regard to medications. They have 4 vests for all 600 individuals with CF. In the U.S. usually each person with CF has a vest in their home. There are no CF...
by Laura Bonnell | Aug 2, 2022 | News, Videos
Mohamed hates cystic fibrosis. We can relate. The Bonnell Foundation is grateful for his honesty. Mohamed’s 13 year old son is well thanks to the hard work and research by his Dad. You’ll enjoy his breathtaking honesty in this video.
