by Guest Author | Mar 20, 2026 | Inspirational Stories
My son’s story begins at birth with meconium ileus (a warning sign closely related to cystic fibrosis). He underwent his first surgery at five days old, during which 30 cm of his intestine was removed, leaving him with a pediatric ileostomy for 45 days until his...
by Guest Author | Mar 16, 2026 | Podcasts
“What if a blood draw didn’t have to feel terrifying, Abby Rose is a child life specialist. And if you have never taken advantage of all they have to offer when your child is hospitalized, you’re going to want to connect with them after you listen or watch this...
by Guest Author | Mar 13, 2026 | Speaking
My daughter Emily and I were honored to speak in Omaha, Nebraska at the 2026 Midwest Cystic Fibrosis Consortium on March 13th. This meaningful event brought together teams from 21 CF care centers across Nebraska, Illinois, Oklahoma, Minnesota, Iowa, Missouri, and...
by Guest Author | Mar 9, 2026 | Podcasts
Diagnosed with cystic fibrosis at the age of fifty, Sheri Boyd brings a rare and powerful perspective to the CF community, one shaped by decades of undiagnosed illness, years of caregiving, deep resilience, and a strong foundation of faith. Sheri is a passionate...
by Guest Author | Mar 2, 2026 | Podcasts
“Patients are waiting…” Those simple but profound words from Dr. Steve St. Onge set the tone for this conversation, and for why this work matters so deeply. Science has always fascinated me. I often joke that I’m not smart enough to be a scientist, but I have endless...
