by Guest Author | Dec 10, 2024 | Videos
This is a fast moving video with lots of information about Bonnell Foundation programs. It features several different CF stars. You’ll meet our Founder and CEO, Laura Bonnell. The fabulous duo, Clinical Social Worker Claire Haglund and Nurse Coordinator, Wendi...
by Guest Author | Dec 9, 2024 | Podcasts
Emily Schaller, 42, is a heroine with one goal in mind, to Rock CF. A lot of laughs on this podcast with my friend Emily! She talks about her health, the Foundation, new and old legislation and what’s coming up in 2025! Equal parts spark, wit and humor, Emily is...
by Guest Author | Dec 4, 2024 | Media/Press
(Source: MIRS.news, Published 11/26/2024) Rep. Jason Morgan (D-Ann Arbor) is pushing for the Rare Disease Advisory Council to be a priority in the Senate this lame-duck session. Under HB 4167, the council would advise the Department of Health and Human Services (DHHS)...
by Guest Author | Dec 2, 2024 | Media/Press, News
There are 1 million people in Michigan with a rare disease, (and their family and friends) who will be impacted by passage of the Rare Disease Advisory Council (RDAC). Members of the RDAC are meant to offer advice, direct, and develop recommendations for policy around...
