by Laura Bonnell | Oct 12, 2023 | Advocating for CF, Speaking
Laura advocates at the Lansing Capitol. She testified before the Senate Health Policy Committee, asking Senators to pass the Rare Disease Advisory Council (RDAC). This will give all stakeholders (Insurance, Pharma, patients, parents, doctors, etc). Laura was in good...
by Laura Bonnell | Dec 13, 2022 | Speaking
Patients are essential partners in developing measurable value in healthcare. Their voices should be heard by all stakeholders in the healthcare continuum – innovators, manufacturers, providers, payers, regulators and policymakers – from scientific discovery to care...
by Laura Bonnell | Apr 26, 2022 | Speaking
Discover opportunities available to your child with CF. Our guest speakers will highlight local and national programs available for people with CF. We also invite parents of older children to join the meeting and share personal...
by Guest Author | Jan 28, 2022 | Speaking, Webinars
All your questions about how to apply for our education scholarships are answered in this webinar. Previous scholarship winners were on hand to help you navigate the process! We hope students with cystic fibrosis will apply for our college, trade school and community...
by Laura Bonnell | Nov 10, 2020 | Media/Press, Speaking
Laura Bonnell, Founder of the Bonnell Foundation talks about the need and scarcity of PPE in the CF community. Bonnell was asked to speak in the National Organization for Rare Disease Disorders (NORD). You can see her at about 25:45 in this...
