by Guest Author | Oct 21, 2024 | Podcasts
It’s 2023, surely now people of color are correctly being diagnosed with cystic fibrosis right? Nope. They are still underdiagnosed. We hear about it happening in low income countries, but it’s happening right here in the USA. Rachel Alder was diagnosed...
by Guest Author | Oct 14, 2024 | Podcasts
We’re in Canada for this podcast. Canadian Advocate Beth Vanstone has two daughters, one with CF and she’s hosting this podcast with Laura Bonnell. Beth is introducing us to 32-year-old To Touraj Dehghan Manshadi who has a CF mutation that is common to Iran, but rare...
by Guest Author | Oct 7, 2024 | Podcasts
I always tell this group of undergrad students that they are our future, and that makes the future look bright. Atef Choudhury and Naim Mashni are incredible people and students. They’re both Seniors at Lyman Briggs College — majoring in Human Biology....
by Guest Author | Sep 30, 2024 | Podcasts
From news reporting, to CF and beyond. Laura talks about her journey. The Bonnell Foundation: Living with cystic fibrosis is 14 years old. “I was so hopeful all those years ago that my Foundation would take off, and now look at it! We have helped CF families...
by Guest Author | Sep 23, 2024 | Podcasts
We discuss suicide in this podcast. This could be a trigger for some for you. Please remember the National Suicide Hotline can be reached via text or by calling 988. Sorcha Slyvester-Martin from diagnosis to drugs and discovery. When she was three days old, she was...
by Guest Author | Sep 9, 2024 | Podcasts
In this podcast you’ll meet my brother Noah Teicher, and my nephew Colton Teicher. I have two younger brothers, but my brother Noah (the middle child) has two boys who had a rare disease. And we talk about their journey from having a rare disease to being cured....
