The organization addresses challenges faced by rare disease patients of color. They bring together rare disease experts, health and diversity experts.
Their Vision: a world without health disparities in rare disease patients’ communities.
Mission: to address the extraordinary challenges faced by historically underrepresented rare disease patients as encompassed by social determinants of health (SDOH). Jenifer volunteers as the Professional Development Director of the National Association of Asian American Professionals (NAAAP) of Colorado.
Find more here: Rarediseasediversity.org
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