by Guest Author | Nov 18, 2024 | Podcasts
What is a Private Patient Advocate? Do you need one? Laura talks to Dr. Elena Borrelli who is a Doctor of Medical Science and a Board-Certified Patient Advocate who helps people and families with their health care journey. She practices in Shelby Township, Michigan....
by Guest Author | Nov 11, 2024 | Podcasts
Dylan Mortimer did the NYC Marathon. If you know him, you know that he had two double lung transplants. One in 2017 and one two years later in 2019. His second transplant was in NYC and Dylan talks about what it was like to go back to the streets he could barely walk,...
by Guest Author | Oct 28, 2024 | Podcasts
Patient rights: do you know about the rights you have in regard to healthcare? There is a lot of information for you that Sara and Thayer serve to you here, in terms you can understand. They both work for the Partnership to Improve Patient Care, or PIPC (a coalition)....
by Guest Author | Oct 21, 2024 | Podcasts
It’s 2023, surely now people of color are correctly being diagnosed with cystic fibrosis right? Nope. They are still underdiagnosed. We hear about it happening in low income countries, but it’s happening right here in the USA. Rachel Alder was diagnosed...
by Guest Author | Oct 14, 2024 | Podcasts
We’re in Canada for this podcast. Canadian Advocate Beth Vanstone has two daughters, one with CF and she’s hosting this podcast with Laura Bonnell. Beth is introducing us to 32-year-old To Touraj Dehghan Manshadi who has a CF mutation that is common to Iran, but rare...
by Guest Author | Oct 7, 2024 | Podcasts
I always tell this group of undergrad students that they are our future, and that makes the future look bright. Atef Choudhury and Naim Mashni are incredible people and students. They’re both Seniors at Lyman Briggs College — majoring in Human Biology....
