by Guest Author | Mar 7, 2022 | Advocating for CF
The Bonnell Foundation, CFRI and CFEN collaborated by making this video that will help you understand what a Rare Disease Advisory Council (RDAC) is all...
by Guest Author | Feb 9, 2022 | Advocating for CF
Sometimes economists can have more control than your doctor about whether you get the medicine that treats your...
by Bonnell Foundation | May 3, 2019 | Advocating for CF
National Cystic Fibrosis Awareness Month in May encourages education in the battle against a lung disease affecting more than 30,000 people in the United States. Cystic Fibrosis (CF) affects more than just the lungs. This genetic disease causes constant lung...
by Bonnell Foundation | Apr 24, 2019 | Advocating for CF
The Bonnell Foundation: Living with Cystic Fibrosis and Rock CF organized the CF Task Force in January of 2017 to make certain that we were raising awareness as a CF community. Our hope since then has been that lawmakers will use us as a resource when making decisions...
by Bonnell Foundation | Dec 8, 2015 | Advocating for CF, Media/Press
Governor Rick Snyder talking to Laura Bonnell about Michigan Medicaid issues for people with CF. And Chris Priest, Director of Michigan Medicaid in a meeting to recommend approval of Orkambi for patients on Managed Medicaid.
by Bonnell Foundation | Apr 1, 2011 | Advocating for CF
Bonnell Foundation president Laura Bonnell and daughter Emily traveled to Washington D.C. March 30th-31st, 2011 to advocate for CF. They visited Rep. Sander Levin’s office and also met with Representatives Gary Peters, Bill Huizenga and John Dingell.
