by Laura Bonnell | Nov 27, 2023 | Podcasts
Please consider subscribing, rating and commenting on our podcast (Spotify). But you can hear our podcasts anywhere. Dr. John Schuen is the division Chief of Pediatric Aerodigestive Specialties at Helen DeVos Children’s hospital in Grand Rapids. He is also the...
by Laura Bonnell | Nov 20, 2023 | Podcasts
Bernie Martin is a Writer, Creative Consultant and, most importantly, Mother of a CF Fighter. After 15 years working as a Copywriter and Creative Director in some of Ireland’s top advertising agencies, she started her own consultancy called The Salty Pen in 2018. This...
by Laura Bonnell | Nov 18, 2023 | Advocating for CF, Speaking, Uncategorized
It was an exciting time in Washington, D.C. on November 14th and 15th. Bonnell Foundation CEO, Laura Bonnell traveled to our nation’s Capital to speak at the Rare Action Access Project (RAAP). Laura talked about the importance of passing the Rare Disease...
by Laura Bonnell | Nov 13, 2023 | Podcasts
Newborn Screening, do you know what it is, do you everything about it? Did you know that people of color are less likely to be diagnosed by newborn screen because in most cases, states test for common mutations, or white mutations. Newborn Screening is a public health...
by Laura Bonnell | Nov 8, 2023 | Advocating for CF, Speaking
Patient and Caregiver Perspectives from the 2023 NORD Breakthrough SummitWe asked those impacted by rare disease to share their experiences and takeaways from the summit.By Eric Monticello It’s often said that rare diseases aren’t that rare. And the National...
