by Guest Author | May 5, 2025 | Podcasts
Eight miles. Two friends. One cause. In this inspiring episode, Jacob Venditti opens up about his life with cystic fibrosis, offering candid updates on his health and the challenges he faces as he prepares for a lung transplant. He emphasizes the vital role of...
by Guest Author | Apr 21, 2025 | Podcasts
From Clunky to Cutting-Edge: The Evolution of Airway Clearance with Nicole Dunn When our daughters first received their vest machines, they felt like they weighed a hundred pounds and had to be plugged into the wall. The vests didn’t fit well—riding high in the...
by Guest Author | Apr 14, 2025 | Inspirational Stories
My son Tim is 41 years old and lives with both cystic fibrosis and autism. His CFTR mutations are exceptionally rare—it’s quite possible he’s the only person in the world with this particular combination. Thankfully, the life-saving medication Trikafta...
by Guest Author | Apr 7, 2025 | Podcasts
CFRI’s Executive Director, Siri Vaeth is sunshine to me. She’s a dear friend. We met after Siri took on her role with the Cystic Fibrosis Research Institute. I consider Siri a dear friend, and a mentor. Siri is truly among the smartest people I know. She is an...
by Guest Author | Mar 24, 2025 | Podcasts
I love that I was able to bump into Aaron Trumm via an email. He reached out to check in about our scholarship program for college. We only award grants to undergrad students, but I was intrigued by all I learned about him. Aaron has CF, he is post-transplant, he...
