by Guest Author | May 19, 2025 | Podcasts
Cystic Fibrosis and obesity? Until recently this has not been a topic of conversation for the CF community. The reason for obesity in the CF community is better health and longer lives, so the concern is now a reality. University of Michigan CF doctor, Carey Lumeng is...
by Guest Author | May 12, 2025 | Podcasts
A 70-year-old person with cystic fibrosis. It’s a phrase that wasn’t just uncommon a few decades ago—it was virtually unheard of. When Luanne McKinnon was diagnosed in 1969 at just 13 years old, doctors told her parents she might live to be 19 years old. Today, Luanne...
by Guest Author | May 5, 2025 | Podcasts
Eight miles. Two friends. One cause. In this inspiring episode, Jacob Venditti opens up about his life with cystic fibrosis, offering candid updates on his health and the challenges he faces as he prepares for a lung transplant. He emphasizes the vital role of...
by Guest Author | Apr 21, 2025 | Podcasts
From Clunky to Cutting-Edge: The Evolution of Airway Clearance with Nicole Dunn When our daughters first received their vest machines, they felt like they weighed a hundred pounds and had to be plugged into the wall. The vests didn’t fit well—riding high in the...
by Guest Author | Apr 14, 2025 | Inspirational Stories
My son Tim is 41 years old and lives with both cystic fibrosis and autism. His CFTR mutations are exceptionally rare—it’s quite possible he’s the only person in the world with this particular combination. Thankfully, the life-saving medication Trikafta...
