by Guest Author | Jun 17, 2024 | Podcasts
As people with cystic fibrosis live longer, with a life expectancy currently at about 56 years old, many women with CF will be going through menopause. I recently spoke to doctors at a hospital gathering, and recommended they speak to women with CF about menopause....
by Guest Author | Jun 12, 2024 | Media/Press, News
“The future of medicine is in the hands of the next generation of medical students I have come to know. They are bright stars, and I am confident in their medical careers” says Laura Bonnell, the CEO of the BonnellFoundation: Living with cystic fibrosis. “I was...
by Guest Author | Jun 10, 2024 | Podcasts
Dr. Caleb Bupp. In my opinion. A scientific star. He is a most humble human, but has every right to brag, but he never would. I do believe he’s a genius. You will love this podcast. We talk about rare disease, his family and how he discovered and helped families...
by Guest Author | May 15, 2024 | Advocating for CF
The Bonnell Foundation is working to raise awareness about the concerns over the Prescription Drug Affordability Board. This would harm research and development. As of today (May 9th, 2024) it has passed the Senate and is before the House. Without amendments made to...
by Guest Author | May 13, 2024 | Podcasts
Approximately 10 percent of the CF population is waiting for a CF modulator drug that will help them by correcting the underlying condition of their disease. Current modulator drugs help more common CF mutations. Emily Kramer Golinkoff is one of the people who...
