by Guest Author | Feb 27, 2025 | News
LANSING, Mich., Feb. 27, 2025 — State Rep. Jason Morgan (D-Ann Arbor) will reintroduce legislation to create the Michigan Rare Disease Advisory Council (RDAC) in honor of Rare Disease Day tomorrow. The purpose of the council is to create a publicly available list of...
by Guest Author | Feb 24, 2025 | Podcasts
Michael Armstrong is a 25-year-old pre-law student. He loves to read, paint, play card games and video games. He was diagnosed with CF as an infant. We’re going to talk about his CF journey and how life took a turn when he was being evaluated for a lung transplant in...
by Guest Author | Feb 13, 2025 | Media/Press
Laura Bonnell, CEO of The Bonnell Foundation: Living with Cystic Fibrosis, talks with Marie Osborne on WJR radio to discuss how a 15 percent cap on NIH grants will catastrophically impact research and end hope for cures. read more
by Guest Author | Feb 10, 2025 | Podcasts
If you lose a child to CF, what does that do to parents? To their identity? And their place in the CF community. These are hard discussions to have, but for a couple years now Peggy Hawkins has want to share her story on this podcast. Peggy talks about the toll...
by Guest Author | Jan 27, 2025 | Podcasts, Uncategorized
Saving yourself by way of advocacy. Living with cystic fibrosis podcast host, Laura Bonnell talks to CF advocate, Amanda Boone about the fight that grew from a threat to her medications in Colorado. Amanda has led the way against the Prescription Drug Affordability...
