by Guest Author | Mar 30, 2026 | Podcasts
Three decades caring for patients with CF, that’s Dr. Alan H. Cohen. His experience continues to shape everything he does today. As a pediatric pulmonologist (board-certified) , he has walked alongside patients through some of their hardest moments, including advanced...
by Guest Author | Mar 23, 2026 | Podcasts
I’ve known Julie McCaffrey for years. She lives about 40 minutes from me, in Romeo, Michigan. Julie and her husband, Curtis, are raising four daughters, and their oldest, Jenna—now 20—lives with cystic fibrosis. What still makes me smile is how Julie and I were...
by Guest Author | Mar 20, 2026 | Inspirational Stories
My son’s story begins at birth with meconium ileus (a warning sign closely related to cystic fibrosis). He underwent his first surgery at five days old, during which 30 cm of his intestine was removed, leaving him with a pediatric ileostomy for 45 days until his...
by Guest Author | Mar 16, 2026 | Podcasts
“What if a blood draw didn’t have to feel terrifying, Abby Rose is a child life specialist. And if you have never taken advantage of all they have to offer when your child is hospitalized, you’re going to want to connect with them after you listen or watch this...
by Guest Author | Mar 13, 2026 | Speaking
My daughter Emily and I were honored to speak in Omaha, Nebraska at the 2026 Midwest Cystic Fibrosis Consortium on March 13th. This meaningful event brought together teams from 21 CF care centers across Nebraska, Illinois, Oklahoma, Minnesota, Iowa, Missouri, and...
