by Bonnell Foundation | Aug 1, 2016 | Inspirational Stories
The initials “CF” have forever changed our lives. The highs and lows make up our story. We have a wonderful group that dedicates each and everyday to make my son the healthiest version of himself. Teachers, nurses, doctors, pharmacists, RTs, therapists and...
by Bonnell Foundation | Feb 13, 2016 | Inspirational Stories
I do not have CF , but I am the stepfather of a daughter with CF. She wouldn’t use that term since I am the only Dad she knows. Living with a child with CF is a constant mental struggle. There are so many great days opposed to bad days that your mind at times...
by Bonnell Foundation | Dec 8, 2015 | Advocating for CF, Media/Press
Governor Rick Snyder talking to Laura Bonnell about Michigan Medicaid issues for people with CF. And Chris Priest, Director of Michigan Medicaid in a meeting to recommend approval of Orkambi for patients on Managed Medicaid.
by Bonnell Foundation | Dec 8, 2015 | Media/Press
This is 29 year old Kristina Caudill. She has cystic fibrosis. I (Laura Bonnell) met with her Monday to talk about how many times her managed medicaid plan denied her request to get on Orkambi, an approved drug for CF by the FDA (July). Caudill and her CF doctor will...
by Bonnell Foundation | Jul 6, 2015 | News
Via CNBC The U.S. Food and Drug Administration said Thursday it had approved the use of Vertex Pharmaceuticals’ Orkambi, a drug aimed to treat patients with cystic fibrosis, on patients who are at least 12 years old. The company’s shares were temporarily...
