I do not have CF , but I am the stepfather of a daughter with CF. She wouldn’t use that term since I am the only Dad she knows. Living with a child with CF is a constant mental struggle. There are so many great days opposed to bad days that your mind at times fails to have the ability to settle itself. I have not been in Sklar’s life in its entirety. Her mother went through the back to back hospital visits and the stress of finding out about her illness in the beginning. But I have been here enough years to watch her go from a small struggling CFer to the amazing little girl she is today. I am absolutely in awe of lack of fear for death she has. Whatever it is she has the spirit high enough to lift a whole house. We thought as we watched her grow up over the years that she would eventually do well enough not to have the constant supervision and care. We couldn’t have dreamt in our imaginations just how well she would be doing. It has literally been years since we had a hospital stay. And her lungs are improving. We give a lot of credit to her current condition in our change in lifestyle. We moved from the city, near Flint, Michigan, to up north rural in the woods living. Her spirit, her physical health, her attitude all changed in such a way that we could never change it back. It has been an amazing journey. Times are difficult being the stepparent , but only because of how I feel about her bio dad not caring. It’s a hard struggle with CF , but its worth every second. Summer 2015 family went to Give Kids The World in Orlando and had the times of our lives !!! Thanks GKTW
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